You can run, but you can never hide

It’s been a long time since my last post. I’ve been in a fuddled, confused state of mind, not feeling very communicative, not having much clarity of thought and word. Broken, tired and hopeless.

You can run but you can never hide from the reality of your life, can you? It always comes back to bite you in the rear. And reality could be in any form. You could take a firm decision to enjoy your long weekend and not think about life and IF, and you could get asked the “So when are you having kids” question right in the beginning of the weekend, when you’re happy and just slightly buzzed on nice strong mojitos. Or it could be in the form of the sight of an obviously newborn baby wailing loudly, and being rocked to silence by an obviously inexperienced dad in the park on a sunny afternoon. You walk silently by, and all you can do is reach out for your DH’s hand and squeeze it.

It’s been over a month since our BFN and it hasn’t been easy. On the outside, life has gone back to being routine. But the emptiness comes back to haunt us and taunt us every day. I feel disillusioned from most things in life – from my job to household chores to working out to even just relaxing. No fun in anything.

I guess my heart and mind needs an anchor or a goal to look forward to, and there is none right now. Of late I have been feeling like a balloon floating away into the sky. No destination, no goal, no plan, no “next steps”.

DH is a little bit in the “ostrich mode” – ie, dig your head in the sand and ignore the problem, hopefully it will go away. I realize he is tired of IF, and wants to lead a normal – hormone free, treatment free life for a while. I find myself closing off from him a little bit because I find him avoiding any discussions of next steps. At the same time, I don’t want to push him, because I don’t want him helping me with our next steps out of force from me. I want it to come from him. I don’t know when that will be.

And I alone don’t have the motivation to do anything on my own. There’s so much that needs attention, and I’m just not up to giving attention. My list grows daily:
1) Find a new job. I took this one because I needed a job at that time. I don’t like it, and clearly I don’t fit into the work environment. But I’m not motivated enough to do anything about it. I’m not even confident enough to do anything about it.
2) Get back to working out and living healthy. Obviously I need to. I need to be able to fit into my regular clothes. One can wear tents only for that long! But do I have the motivation to go to a gym? No points for guessing the answer to that one.
3) Get the house in order. I’m not even motivated enough to cook food any more. I’m happy canned soup and bread. The house needs cleaning and care. I’m not giving it any attention.
4) Feel worthy again. I don’t even know where to begin on this one.

I’m trying to figure out what to do next with my life, as far as IF is concerned. And I need your inputs. I know some of you have been in the situation I am in, and I’m hoping someone can give me some advice / suggestions on how to navigate the maze inside my head. But PLEASE don’t tell me to “just adopt” or something like that. There’s no “just” anymore – it doesn’t work that way.

I’m also listing my options down, because, who knows – just writing them out could bring me the clarity that I need.

So here are my options, and my thoughts / analysis:

I have 2 remaining frozen blasts. Not the best quality, but still, at least they’re there. And they are normal after PGD.

Option 1: Prep for FET again, and attempt another transfer?
Analysis/ Thoughts: I don’t trust my uterus. And I don’t feel confident to try another FET right now. I don’t know if I may feel differently after some time has elapsed. But for now, I feel “safer” knowing the blastocysts are frozen.

Option 2: Use a surrogate?
Analysis / Thoughts: We can’t afford a gestational carrier through an agency. It will take us a long time before we can gather that kind of money. Also, I’m scared because surrogacy is not guaranteed either. What if the surrogate gets a BFN or has a miscarriage or something? Would we be able to deal with that?
But on this topic, I do have some “hope”. I have a cousin who has offered to carry a baby for us. We are not jumping at the offer just yet, because I feel like she is offering herself to me out of extreme emotion. And while this decision is emotional, it also has to be thought through practically. For one, my cousin doesn’t even live in the same country as I do. She has two young children. And a job. And a life. There’s a lot to consider. But it does give me some hope to know that she has offered, and when the time is right, it will be a matter of working things out on the logistics front. This is an option that I don’t want to exercise any time soon. I guess because this is the only option right now that has any “hope” – and I want to have hope for as long as I can.

Option 3: Adopt?
Analysis / Thoughts: We started exploring the idea, and started talking to agencies, until DH decided he didn’t want to proceed just yet. Our finances need to be in order first, according to him. And while we get them in order, even researching adoption is not an option for him. I don’t agree with him on this, but I don’t want to take on the research on adoption on my own. For 2 reasons – 1) He obviously needs to be part of it, and if he’s not part of it, there’s no point me researching it at all. 2) I want him to take the lead on this research. I’m tired, and bitter, and seeing negative in everything I do. I need him to hold my hand and lead me forward. So I’m stuck on this one.

Option 4: Do another fresh IVF?
Analysis / Thoughts: We had decided that the CCRM IVF would be our last one. But now that we’re done with that, I find myself wondering if I should go back to my regular RE here who did get me BFPs 3 times, one for each IVF I did with him. I wonder if I should just rest my body a bit and try one more time locally here. I don’t have an answer to this one. Of course it would be out of pocket, and there’s the money situation again!

Option 5: Live Child “free”?
Analysis/ Thoughts: I have found myself questioning my intent several times recently. There was a time when I would see DH with friends’ babies, and my eyes would tear up thinking what a great dad he would make, and wishing I could have given him a baby. Of late, I see DH with friends’ kids, and I ask myself “Do I see him doing this on a sustained basis”? And the answer is always “No”. Perhaps it’s self - preservation, that I’ve been protecting my heart for so long that now it believes I don’t want a baby any more. Or perhaps it’s something deeper than that. So I ended up asking DH what he thought. My question was “Do we even want to parent anymore?”
At first his answer resonated with my doubts. He said he wasn’t sure. He said he had been thinking the same thing, and he too could no longer see himself running after kids.
Two days later we talked about it again. And we realized that we should parent. If we already feel like there’s no value in our lives today, how would we cope for the rest of our lives? How will I cope when my brother and his wife get pregnant, or when my sister gets pregnant? It’s one thing to cope with friends’ announcements, and a totally different thing to cope with your siblings’ announcements. So this option is almost wiped out. But I leave it on the slate because doubt comes back to me every now and then.

So there you have it – the whole 9 yards. Sorry the post is so long, and if you have come so far down the post to read till here, Thank You!

What would you do?

Trying to conceive made me infertile.

So what went wrong? How did we get to come back empty handed (or empty wombed) from the Mecca of Infertility? 

At first we were in the dreaded “undiagnosed” category. All my tests always came back normal, as did DH’s. The only thing the RE’s ever had as an excuse was my irregular cycles. In my opinion irregular cycles are the easiest treated diagnosis of IF. I know girls who go months without AF, but when they started TTC, one or two rounds of clomid was all that was needed.

After years of being undiagnosed, and uncategorized, we discovered DH’s Balanced Translocation. I don’t know if we were more alarmed at the discovery, or more relieved that we had finally found something! I kept asking the doctors to give me a reason why my treatment didn’t ever work. I have a scientific, logical mind. I can only buy the “bad luck” answer for that much. Not longer than that. Give me a reason, and maybe I can put closure to the questions in my head.

With PGD tested embryos, we figured there was nothing that could stop us from bringing baby home. How wrong we were.

In 2007, when I first got pregnant after IVF#2, I was on baby aspirin for the first few weeks. At about 8 weeks I had an episode of bleeding – major bleeding. Convinced that we had lost the baby, we rushed sobbing to the RE’s office. He checked, and showed us that the baby was doing fine. He showed us the spot in my uterus from where the blood was coming, and he said “Maybe you can stop the baby aspirin now – your blood may be getting too thin”

I stopped the baby aspirin that day, and that was the day the baby’s heartbeat stopped (approximately, because when the missed m/c was discovered 10 days later, the baby had not grown much in size from that emergency u/s day) 

I had a D&C, and the RE ordered a repeat loss panel for me (though it was my first loss – he wanted to make sure we didn’t miss anything)

Then we discovered MTHFR (I call it the mother fucker gene). I should never have stopped that aspirin. And I will never understand why doctors don’t check all this before an IVF procedure! Why can’t these tests be done as part of our pre IVF work up??

The next IVF resulted in a biochemical pg, and the one following that resulted in an ectopic that they could never find. I had another D&C then. And methotrexate to kill the poor embryo that was growing somewhere where it shouldn’t have. We still don’t know where it was. 

Then we went to CCRM for our last and final cycle. During the one day work up, Dr Schoolie said he thought my uterine cavity was tiny, and could be the reason why I was not being able to stay pregnant. He did a surgery on me to fix the shape and grow the size of the cavity. So, in the course of 12 months, I had had 2 D&Cs and one uterus surgery.

The result? Poor uterine lining. Dr Schoolie thinks it’s the D&C’s that “damaged” my lining. I don’t know how he can be sure the surgery did not contribute to the damage. It’s the same process right? Scraping the insides of the uterus?

Last week, after my BFN, right after the nurse from CCRM called with the news, Dr. Schoolie called to say he was “shocked the cycle didn’t work”. Yes, we were shocked too – I was getting BFPs locally, and I got nothing at CCRM!! He also said that given the fact that I have never carried a pregnancy to term before, and the fact that my lining does seem badly “damaged by the D&C’s”, it may make sense to look at surrogacy for the remaining 2 blastocysts we have. He did mention that if I wanted, we could try to prep my lining again. I told him I did not trust my uterus. He then said, “In which case, honestly, you should consider using a gestational carrier”

So from being “undiagnosed” to becoming someone that probably can never carry a pregnancy to term, what a downhill slide huh?

Bottom line – our struggles with TTC and with IF ended up making me even more infertile. Now I am definitely barren. Before this, I could dream and carry a hope in my heart that it will work - someday, somehow. Now I know it won’t.

Trying to conceive made me infertile. Perhaps I just should not have tried so hard?

My body killed my blastocysts

That’s right, folks. BFN. Big fucking negative. 2 great quality 4AA grade blastocysts killed mercilessly by my barren empty womb. I’m that woman that contributes to the BFN parts of clinics’ statistics, so that the stats average out.

What the hell am I talking about? It’s about time I came out and told you what I’ve been up to in the last couple of months.

I’m sure some of you may have wondered why my blog was so disjointed recently. When Nikki has 4 blasts on ice, why is she going all over the place, exploring adoption, and then seemingly not even exploring adoption any more, writing infrequently, and writing irrelevantly?

Very simple explanation. No, I wasn’t nuts. I knew we had those 4 blasts, and after we called off our FET in March, DH and I had decided to take a little break, and then prep my stubborn lining again. I just didn’t want to write about it on my blog, because I was feeling a lot of “performance anxiety”. I told some of you individually, but didn’t want to blog about it till it was done. It was, after all, our last hurrah.

With Aunt F in May, we decided it was time. We got all set up, and I got on BCPs. Started Lupron on June 3, and went for my first lining check on 7/1. FET was scheduled for 7/7. Of course my lining was too thin. FET got pushed out to 7/16. Lining check got repeated on 7/10. Still too thin. FET got pushed out to 7/24, and then I realized Dr. Schoolie would not be there for my FET on 7/24. I requested for a date when he would be there, because after all this, I wanted him to do the honors. Specially since he had done surgery on my uterus, and “knew” my uterus well. So we got rescheduled yet again to 7/27. Lining check was on 7/21, and my measly pathetic lining measured at 7 mm “from the most flattering angle” – according to the local RE here.

We flew out to Denver, and brought home 2 of the best quality blasts we could. They thawed 2 blasts, and both thawed beautifully. 100% cells survived, one was hatching, and the other almost hatching. Beautiful. According to the embryologist “you couldn’t even tell the blastocysts had ever been frozen”

Of course I needed additional help – hormonal help. My protocol had been very aggressive from the beginning, but by the end of it, I was on this:

2 Estrace suppositories daily

2 Delestrogen injections weekly

2 Estrogen patches every other day

3 Endometrin suppositories daily

1 PIO shot daily

1 Prenatal daily

2 Folgard tablets daily

1 Baby Aspirin daily

1 Blood Pressure medication daily

Fast forward to 8 days later – yesterday. I POASed. BIG FUCKING NEGATIVE!

9 DPFET – Today – Beta test – BIG FUCKING NEGATIVE! 

Why? What have I done to deserve this? Why can my fate not turn around, for once? How much more do we have to go through? I have quietly ploughed on for more than 8 years. My TTC resume now reads:

8 + years TTC #1

6 clomid cycles – BFN

5 IUIs – BFN

5 IVFs –  1^st BFN, 2^nd  missed miscarriage, 3^rd chemical pregnancy, 4^th ectopic pregnancy, 5^th (Freeze all FET) BFN.

The last year has included 1 long drawn out IVF cycle – 6 trips to Denver, and $$ that we could not afford to spend, but did, in the hope that it will all be worth it. 

So after countless shots, suppositories, surgeries, treatment cyles, losses, heartache, pain – here I am, as empty wombed as I was when we embarked on this journey.

The prospect of growing old childless is looming large upon us. It's a scary thought. Some of you know how dark and scary that place is. And though I know I will never regret my TTC journey and all the treatment we went through, I know I will always regret not being able to have DH’s and my child. 

You will probably still wonder – what about the 2 remaining blastocysts? I am NOT trusting them to my killer uterus. I will keep them frozen, or if I find the strength in my heart to go through surrogacy, I will. But I am not putting another embryo into my body. I’m done. I’m so done.

Sometimes you can’t fight fate. Fate is sometimes stronger than we are – we believe that if we try hard enough, we can achieve anything in life. Maybe not.  

In dance steps....

DH and I like watching these dance shows. Yeah, we're "those" people!

So anyway - the other day, this piece came on. It was a tribute to breast cancer, and was beautifully executed. When the piece got over, I quietly reached out for a tissue to wipe my tears. I had such a huge lump in my throat that I couldn't speak. I turned to look at DH, and I saw him reaching out for a tissue as well. He too had tears in his eyes.

When we finally spoke, we realized that we had both seen the piece as being very fitting for a couple fighting IF too. The struggles, the despair, the anger - it all comes out so beautifully! The girl seems to be helpless, turning to the man for support, trusting him, wanting him to make her pain go away. The man tries to lift the girl up out of her (their) sorrows as much as he can. When he is alone, he struggles too, but becomes strong for the girl when he is with her. 

There is so much sadness, anger, helplessness in this piece. But at the same time, so much dependency on each other in the piece as well. 

To me - this is a very true reflection of our life. 

The value of a lady

I recently had a conversation with my manager about *maybe* going to Denver at some point in the future. I wanted him to know, so there was no misunderstanding if and when I did go.
The conversation went something like this: (The sequence of sentences may be mixed up a little, because I was too shocked to be able to remember everything, and you’ll see why I was shocked)

Me: I wanted to let you know that at some point DH and I will be going to Denver for our “treatment”.
Him: What treatment?
Me: Our fertility treatment – I had mentioned it to you before, right?
Him: What treatment?? OH the pregnancy one?
Me: Yes, the pregnancy one (controlled eye roll here)
Him: How old are you?
Me: I’m 38.
Him: You’re 38????
Me: Yes
(This “You’re 38??” and “Yes” was repeated some 5 times)
Him: How long have you been married?
Me: 12 years, and we’ve been trying since 2001.
Him: You’ve had some abortions right?
Me: NO I HAVE NOT HAD ANY ABORTIONS! I HAVE HAD MISCARRIAGES OR PREGNANCY LOSSES!
Him: It must be very hard.
Me: Yes it is.
Him: I used to be like Hitler in my house, never cared about anything until my wife had her operation.
Me: What operation? You mean she had a C-Section?
Him: Yes – they take the baby out, and they ask us to cut the cord. That moment changed me. That’s when I realized the value of a lady.
Me:……………………….. (Thinking to my self – Oh my word!!! Which means, there is no value in my existence at all!!)

I picked my jaw up off the table, muttered something unintelligible and left the room.

In retrospect I think there is so much I should have not said, or that I should have cut the conversation short right in the beginning when I got the drift that he wasn't evolved enough in the EQ department. But at that time, I was just so shocked that I ended up sitting there like a sputtering gold fish, enduring this!


Oh BOY!!! What would you do if anyone spoke like this to you?

More than the inability to have a child

Infertility gets defined as the inability to get pregnant after trying for 1 year (or 6 months depending on your age), or the inability to carry a pregnancy. That’s the technical description, and what is apparent and visible to the outsider.

But to the couple dealing with IF? It pervades every aspect of life. At least for DH and me, that is the case. It impacts relationships, confidence, career, finances, body image – just about everything!

I look back over the years, and there’s so much that has changed, so much we have lost…all because of infertility. This is what my infertility has done to me….

• Relationships – Let’s see. How many relationships have changed, and how they have changed!! The most important one – DH and my relationship. On the one hand, it has matured and grown deeper, to a level where we really really “get” each other. We’ve both become protective of each other, and will unconditionally put the other in front of anything else in life. However at the same time, our relationship has suffered – deeply so. The spontaneity has left the relationship. Much of the laughter has left. Much of the intimacy has left. In its wake – there’s a lack of self confidence, and poor body image.

• Relationships with our families have changed. Our families love us, and hurt because we hurt, but nobody gets what we are going through. And I can’t blame them – only when you’ve walked in our shoes will you know how badly they pinch. There are times that I want to talk to my parents, and tell them how I feel inside, but something holds me back. I end up projecting my same old “I’m brave, I’m fine, my life is good” face to even them. At the same time, I can’t help but feel “guilty” that they don’t have grandchildren or nieces / nephews!

• Relationships with friends - if any still remain! Most of our “friends” have fallen off our radar. They don’t know what to say to us anymore, or they end up saying or doing things that hurt, causing us to retreat further into our shells, in some cases, far away enough into our shells to never come back. The ones that are still around are constantly treading on eggshells around us. Social isolation - yes, that's us. I got tired of putting on a happy face for everyone, and I got tired of expecting people to understand. I gave up.
  

• My career – What’s the point of having worked so hard at getting at an MBA degree when my life was going to become all about my IF? Any time that I have a choice to make, I have chosen to overlook my career. I’ve taken “lesser” jobs, I’ve given priority to my doctors’ appointments and treatment schedules, and needless to say, I’m nowhere close to my classmates in terms of achievements professionally. It hurts to see people be able to focus on their careers and rise, while everything else in their life happens smoothly. For the general subsection of my friend circle / classmates, children have been born and are growing up without even a tiny bump on the road. Part of it were choices I made, and part were situations I had to deal with.

• My confidence levels. I've said it before, and I'll say it again. I have ended up feeling inadequate as a woman. As a wife, daughter, daughter in law. Reproduction is known to be one of the things that drives all creatures to even exist. And I feel like I have failed at the reason to exist. How then can I even dream of ever feeling confident again? Do I spend the rest of my life in isolation? To add to the feelings of inadequacy, there are the feelings of ugliness and unattractiveness. All the extra weight - the tight clothes, the pants that don't fit, the old pictures that mock me with my own skinny face smiling back at me!

• Hope and the ability to look forward and dare to dream. I can't any more. IF has taken it all away from me.
  

I don't know if I have taken IF particularly badly, or if I don't know how to deal, or if I'm making a bigger deal out of it than it is, but IF has changed who I was, and made me into this person I do not like. I don't know if I have allowed IF to take away more from me that I should have, but I do know that it sucks to be an infertile person living in such an uber fertile world.

It's been a while....

I'm here. Alive and well. I've just been very quiet lately. There's been a lot going on in my life - but no, I did not have a miracle BFP, and I am not pregnant and therefore in hiding. (Sadly - I'm not one of those girls that everyone knows - you know the one people talk about "I know this girl, she tried for 8 years, had 3 losses, went through 5 IVFs, and just when she had given up, BAM, she was pregnant on her own!")

My life is average.

Remember my uncle in the east coast? The one I went to meet? He had been so sick for so many years, with each episode adding on to the previous one. The final event in March this year when his lungs collapsed was like the last straw on his back. He was on ventilator, and being fed through a tube, and with no hopes being given by any doctor that he would ever recover from it. It was really sad - his brain was alert and active, but his body would not cooperate. His muscles had atrophied over the years and he had been on a wheelchair for a few years. He wasn't able to do anything for himself anymore, and it was not getting better. He decided he had had enough. He requested the doctors to pull the plug a couple of weeks ago. They took him through several psychological and medical evaluations and then decided he was sane enough to be making the call he was.

My parents came from India, and were with my uncle when the ventilator was removed. The doctors had said it would take 2 - 3 hours after the ventilator was removed for his oxygen levels to be too low for him to survive.

But no - 3 hours went by, 5 hours went by, 12 hours went by and he was doing ok. We were all confused. Were we witnessing a medical miracle? The doctors were shocked, and they said they didn't know what to say any more. Finally it was 3 days after the ventilator was turned off that my uncle passed on. His family, my parents, my DH, and a couple more relatives were with my uncle in his final moments.

It's been a couple of weeks now. My parents are back in CA with us - they will stay for a little more time before they head back to India.

I've been busy trying to soak up every moment with my parents while they are here, and therefore have been inactive on the blogs. I'm sorry that I haven't been commenting much on your blogs, and I haven't been writing at all. I do try and read most of your posts, but sometimes am not able to sit and comment back. I will be back to being more regular soon, I promise!